Support for members is achieved, in part, through monthly meetings, celebrations, a picnic, the internet (emails, our website, and an online forum), a membership database, hospital visits, member recognition (birthdays, hospitalizations, bereavement) and an educational library of CHD-related, health and family coping materials and website listings.
We seek to provide support to those CHD patients/ families who are not yet members of LCK by reaching out to them with awareness brochures, newsletters, a toll-free number for phone support, coffee drop ins at Levine Children’s Hospital (LCH) and presentation of a ’Care Package’ to patients admitted to the CVICU at LCH. |
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On the first Thursday of the month at 6:30 p.m., Levine Cardiac Kids holds a monthly meeting in Conference Room B at Levine Children's Hospital. Every month we offer a 1 ½ hour meeting which features: a guest speaker addressing a CHD-related topic, an Inspirational Story by an LCK-member family, socializing among members, organized activities for children (ages 3+) supervised by Child Life, a celebration of LCK member birthdays/anniversaries, and a brief highlight of an upcoming LCK event/activity. |
On two mornings a month from 10:30am to 12pm, Levine Cardiac Kids meets in either the 6th Floor CVICU Family Waiting Area/Lounge or the 8th Floor Family Lounge to host a casual gathering in which members and hospital CHD families can come to have coffee and bagels and find support and CHD information. |
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LCK has established a program called "Heart to Heart" in which experienced parents of CHD children are matched to new families seeking support of other families. In order to be matched to a family, LCK members must be certified through a free, one-day workshop at the hospital. For more information, please contact Angela Baakko at a.baakko@levinecardiackids.com |
| A specific area has been designated in the new Sanger pediatric offices to be the “LCK Kids Corner” in which gently used toys and books, donated by LCK members, are provided for entertainment purposes prior to a doctor’s appointment. A bulletin board will also be posted in the area so that items such as our flyers and meeting notes can be posted for parents to see/read in an effort to spread LCK awareness. If you have questions, you can contact Kim Ransom at k.ransom@levinecardiackids.com |
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Levine Cardiac Kids is currently creating a scrapbook that documents our CHD kids' heart stories and their accomplishments. We are doing this for our historical purposes, as well as to place in the waiting room of the CVICU for families to refer to give inspiration and show how the kids develop/thrive after surgeries.
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LCK presents Care Packages to patients/families coping with a CHD who are admitted to the CVICU in LCH. The Care Packages (a cotton tote bag with the LCK logo) contain items like snacks, pen/paper, lotion, a sports water bottle, lip balm, lotion, etc. that we know, based on our hospital experiences, are valued and appreciated. Additionally, the package contains information about LCK, the CVICU, and – for those patients older than 1 and who are undergoing heart surgery - a “Hug n’ Heal” Heart Pillow created in a joint effort between LCK and the Girl Scouts. For more information on our Care Packages please contact Angela Baakko at a.baakko@levinecardiackids.com

Hug and Heal Heart Pillow will be given to older kids who need to hold something against their chest after surgery
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Items in the Care Package |