Our Mission Statement |
Levine Cardiac Kids is a group that supports children who are being treated for, or have recently been diagnosed with, Congenital Heart Defects (CHD) and their families. Our goal is to provide a forum in which members:
- Support one another through the sharing of experiences. As parents who cope with many of the same issues and anxieties over our children’s health, we share a special bond and offer each other the “parent perspective” that differs from that of the medical perspective. For the CHD children, support is provided primarily through the family structure, but also through building relationships with other CHD patients and gaining a deeper awareness of what it means to live with a CHD.
- Educate ourselves on pertinent issues related to heart-health, diagnostic procedures, treatments, terminologies, financial/insurance considerations and coping strategies.
- Spread awareness of congenital heart defects and the existence of our support group within the community.
Additionally, we seek to develop relationships with medical professional and hospitals that provide comprehensive pediatric cardiac care, such as Levine Children’s Hospital, to provide our families with a direct link to the access of medical support, facilities, and advocation of quality pediatric medical care. |
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Committees |
This listing provides a committee structure for the group. Each committee is listed in bold with a brief description of its purpose. A listing of tasks or activities that comprise the committee is also provided. Please, consider the area(s) in which you would be interested serving a role; where you feel motivated to invest the time necessary to make the tasks work and your talents shine.
- Parent Support (Internal) This committee focuses on providing a connection to and support for each other – the parents, families and CHD children who make up our “support family”. Tasks include: Member Database, Biography/Photo Albums, Emotional Support, Birthday recognition, Monthly Meeting Planning/Discussion points, Newsletter, On-Call Hospital help
- Parent Support (External) This committee involves reaching out to newly identified CHD kids/families to offer our support, knowledge and understanding. (Note: This will require some basic training, provided by the hospital or social service agency due to HIPPA and other regulations.) Tasks include: “Parent Match” List:, Phone Support, Hospital Visits/Gift Bag Creation.
- Social (Kid Support): This committee plans the fun, family-gathering events, specifically geared for our kids which make for a celebration and reunion. Anyone interested could attend; families, doctors, sponsors, new CHD families, visiting CHD families. Tasks include; Picnics, Christmas Party, Play dates, Kid Camps, Refreshment organization for meetings, working with Major Fundraising Event (see below).
- Fundraising: This committee is responsible for planning/executing the fundraising activities/events that raise money to support the efforts of our group. They work in conjunction with the Treasurer and Committee chairs. (Note: A budget has not yet been determined). Tasks include: Seeking Sponsors, Donation Solicitation, and Major Fundraising Event.
- Awareness: This committee is similar to a communications committee, dealing with all aspects of making various communities (hospitals, internet, Charlotte, CHD groups, physicians, etc.) aware of Pediatric CHD and that we exist as a group. Tasks include: Website, Community (Media) Outreach, Creation of Flyers/Artwork, Distributing Flyers, Ronald McDonald House Liaison
- Education: This committee is responsible for collecting CHD/health-related information that is helpful to the group, sharing it with the group, and organizing the information for easy access. Tasks include; Maintain Library of Medical Research , Collect and manage CHD related health information, Arrange guest speakers, Online Research, Financial/Insurance Support, Hospital Regulation
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